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Resources to download

Resources we have prepared which you may find useful.

Name Description Modified Download
Name: JHS and EDS at school information sheet Description: A handy double sided A5 sheet explaining key information about JHS and EDS at school Modified: 20/05/2021
Name: Primary prompt cards Description: An example card with prompts to help primary school pupils to communicate what they need in relation to their condition. Modified: 20/05/2021
Name: Secondary prompt cards Description: An example card with prompts to help secondary school pupils to communicate what they need in relation to their condition. Modified: 20/05/2021
Name: Primary pupil profile Description: A template to help primary pupils communicate what they'd like others to know about them. Modified: 21/05/2021
Name: Secondary pupil profile Description: A template to help secondary pupils communicate what they'd like others to know about them. Modified: 21/05/2021
Useful links

Below are links to sites offering information or products which you may find useful.

Title Description Link
Title: Ezra’s Extraordinary Stripes Description: A picture book written in a narrative style exploring coming to terms with being different.
Title: An Educator's Guide to the Hypermobile Student Description: A booklet for educators produced by the Hypermobility Syndromes Association
Title: Understanding hypermobility disorders/syndromes in schools Description: Published and presented by NASEN, Jane Green, MA Ed. Talks about hypermobility issues, most common symptoms plus possible associated conditions/disorders and how these affect pupils in schools.
Title: EDS and symptomatic hypermobility presentation Description: A presentation by Jane Green at the UKEdConf 2021 on EDS and symptomatic hypermobility
Title: Video about hypermobility disorders and their impact at school Description: Presentation titled Teaching and Learning with Hypermobility Spectrum Disorders by Lorna Baldry from the UKEDCHAT 2021 conference
Title: PoTS UK website Description: More information about postural orthostatic intolerance (PoTS), including diagnosis and management.
Title: What is the link between joint hypermobility and anxiety? Description: In this short interview, Dr Jessica Eccles explains her research into the connection between joint hypermobility and anxiety.
Title: Sensory processing awareness training video Description: A 25 minute training video by Bedfordshire Community Health Services Paediatric Occupational Therapy
Title: Stickman communications Description: Resources to help disabled pupils
Title: Multi-sensory world website Description: Online shop offering a range of products including toys to improve fine motor skills and hand-eye coordination
Title: Sensory direct website Description: Online shop offering a range of products toys to improve fine motor skills and concentration
Title: Cambridge activity boxes Description: An online shop offering boxes of products to help strengthen fingers in young children

Featured information

A row of books in a library
What are JHS and EDS?

Learn how joint hypermobility syndrome (JHS) and Ehlers-Danlos syndromes (EDS) affect pupils at school
Four children in yellow T-Shirts look at a globe with their teacher
Reasonable adjustments

Find out about reasonable adjustments to enable pupils with JHS or EDS to participate in their education and everything school offers
Boy sat at his desk working
The sensory environment

Understanding the sensory differences which may occur in JHS and EDS and the impact at school
Four girls playing netball. One team is wearing yellow bibs
Physical education

Helping pupils with JHS and EDS to stay physically active
Two young women working on a computer
Social and attendance

Overcoming the impact of JHS and EDS on school attendance and taking part in its social aspects
Teacher showing a book to a group of smiling children
About the toolkit

Use the toolkit to improve attendance and attainment for pupils with JHS or EDS in your school